Posts Tagged Photo Story Friday

Photo Story Friday…MaryAnn’s Story

PhotoStory Friday
Hosted by Cecily and Life With Kaishon

 MaryAnn’s Story…

When did you start using tanning beds? and for what reasons?

 The first time I was in a tanning bed was when I was 13. I used to go to my mom’s salon and get into one fully clothed and put a towel on my face and fall asleep. After, we put the tanning bed into our house. When we did that, I was using it very few times but I would use it. My tanning bed addiction did not come until I was in my late teens early twenties. By then I was using them sometimes twice or three times a week. Then I wouldn’t go again for weeks. I was very sporadic in my usage. Nothing like you see the kids do today. The reason I started using tanning beds is because I’m vain. I care what people think about me. I want to look good. In my eyes at that time, being tanned was the only look that was acceptable.

How did your experience change your life?
It was like doing 180 degrees. I completely changed my view of the sun and my views of skin cancer and tanning beds especially. I went through a dark depression for about a year after I was diagnosed. I didn’t want to go outside because people would always ask me, “what happened to you?” But there wasn’t one person who ever guessed that I had, had skin cancer. The day I started doing speeches, and trying to educate people about the dangers of tanning beds and skin cancer in general is the day I regained my life back. I became a survivor instead of a victim. I could finally make a difference in what had happened to me and not just wallow in my own misery.

Is there an inspirational quote or song that keeps you moving forward and gives you strength in your life?
I love the quote, “Life is not measured by the number of breaths we take, but by the moments that take our breath away.” After facing my mortality I realized just how very precious our lives are and we should not take that for granted.

What is the best advice you can give to someone who thinks that skin cancer can’t happen to them?
Think again. Skin cancer can happen to anyone no matter what type of skin you have. People who have darker complexions may have a lower risk of getting skin cancer, but if they are diagnosed they also have a higher death rate because it is harder to catch the cancer early enough. Stay out of tanning beds, keep your sun block applied every two hours and be vigilant about your own skin. You are your first line of defense against skin cancer. Pay attention to your skin.

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Photo Story Friday…Jaime’s Story

PhotoStory Friday
Hosted by Cecily and Kelli

I’m very excited to begin sharing once again the inspirational and touching stories of our readers whose lives have been touched by melanoma. I came across Jaime’s story through our Facebook page (UV Skinz) and I’m honored to share it with you. It’s a real tragedy when someones life is overtaken by this preventable disease.  Raising awareness is key! Please feel free to leave your comments…

Jaime Regen Rea

April 6, 1977 — March 16, 2007

Jaime was only 29 years old when melanoma claimed her life. A beautiful, vibrant life has ended before it had a chance to bloom. And it’s just not right.

Who could have guessed what a profound effect one little ugly mole would have on our family and everyone who knew Jaime and her courageous fight? That mole on her back, perhaps encouraged in its mischief by Jaime’s teenage addiction to tanning beds in search of a “killer” tan, was the beginning of a 9-year journey filled with surgeries, chemo treatments, radiation, and clinical trials. Oncologists, surgical oncologists, dermatologists, radiation oncologists, interventional radiologists, and melanoma specialists became our extended family; cancer centers and hospitals became our second homes. Jaime was stage II for 4 years, just long enough for us to start to relax, and then it advanced to stage IV for the last 5 years. The last year her condition began a steep downward spiral, and we found ourselves going from really bad scan reports to even worse ones — and from very nasty treatments to even worse ones. But her amazing smile never faded and she never lost hope, even when all the medical experts told her there was none.

Along the way, Jaime touched many lives with her positive determined attitude, beautiful smile and contagious laugh, and her strong will to live. She loved life and lived it to its fullest, never complaining about her pain and discomfort. Throughout her journey she brought hope and inspiration to hundreds of other melanoma patients and their families around the world. She fought this evil disease ’til her last breath, never believing that she wouldn’t survive. However, at the end, even though her mind was still willing herself to fight another day, her tired and worn little body no longer had the strength.

 

Jaime was my best friend, my hero, my precious baby girl, and the light of my life; she was Daddy’s little girl and spoiled rotten. I hate this evil disease for taking her from us all and for taking her future and her dreams from her. And I will do everything I can to continue Jaime’s fight against melanoma because I know that is what she would have wanted.

 

I miss you, Sweetypea, and love you with all my heart -

Jaime’s mom, Donna

Thanks to Donna Regen, AIM at Melanoma and in loving memory of Jamie!

What is Aim at Melanoma?

Aim at Melanoma is a non-profit organization committed to melanoma research, education, and awareness. We offer a melanoma community for patients, caregivers, and advocates and collaborate with the world’s top melanoma researchers to find a CURE

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Photo Story Friday–Kimberly’s Story

PhotoStory Friday
Hosted by Cecily and MamaGeek

I am so excited today to be able to share with you a story from a loyal UV Skinz reader and commenter! Kimberly blogs at Walking Through the Valley and was generous and open enough to share her personal melanoma story with us.

How long have you been blogging? and why did you start?

I’ve only been blogging since January this year. I started the blog to inform people about grief issues and skin cancer issues after my father died of melanoma skin cancer 7-years-ago when he was only 51-years-old.

Tell me why you chose your blog name?

I chose my blog name Walking Through the Valley, because it adequately describes what it feels like to see a loved one die from cancer and the subsequent aftermath that follows. I also titled my book about my father’s death from the same idea. front cover

Is there an inspirational quote or song that keeps you moving forward and gives you strength in your life?

I really like the song “Finally Home” by MercyMe. It’s a song about the lead singer of the band having lost his dad at an early age (like me) and hoping to see his dad again one day in Heaven. It gives me hope that I’m not alone in loosing a parent at a young age.

What is the best advice you can give to someone who thinks that skin cancer can’t happen to them or their family members?

Go to the dermatologist and get a full-body skin cancer screening. I know that it sounds embarrassing, but it is worthwhile. I’ve had a few precancerous skin cells removed that may have turned into something worse later on had I not gone personally. Skin cancer can happen to anyone, and it’s best to get checked! My dad was not outside enough to even be very tan, but he still got melanoma. Had he gotten checked sooner or had he been on a regular schedule of exams (like once a year), he probably would be alive even now. Skin cancer kills by moving through the lymphatic system to key areas of the body.

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In my father’s case, he had a melanoma on his arm that metastasized to his lymph nodes under his arm, then metastasized to his brain and finally his spinal chord. What is so terrible about his is that a small tumor in the brain can cause a lot more damage then a small tumor in, say, the lungs or intestines. Melanoma kills, and once metastasized to key areas, kills quickly–and that is the danger in this form of cancer. So get checked and talk to your dermatologist about how often to get checked and how to prevent skin cancer.

Kimberly (center) and her Father (on her right)

Kimberly (center) and her Father (on her right)

Kimberly’s story is not much different from many melanoma victims and survivors. Early detection is the key! No matter what age or race you are it is so very vital that you get yearly check-ups and do self-exams at least once a month. For more information you can visit melanomamonday.org

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Clare’s Clique Interview and Story

PhotoStory Friday
Hosted by Cecily and MamaGeek

I am so honored to have another touching skin cancer survivor story to share with you. I met Clare of Clare’s Clique, blog surfing and when I came across her story I knew that it deserved to be shared with all of the UV Skinz readers! I have to add that the feedback we received from last week’s Photo Story Friday was amazing–Thank You!

So, let’s get to know Clare and her Clique!…

mother's day2

1. How long have you been blogging? and why did you start?

I’ve only been blogging since the summer of 2008.  My husband and I had just relocated back to Wisconsin where we grew up after living for several years in New Jersey.  My sisters and friends had been blogging for awhile and I finally decided it would be a great way to connect with friends and family near and far away.  I’m not into scrapbooking, but thought this would be a fun and modern way to organize and record memories and stories about my family.
2. Tell me why you chose Clare’s Clique as your blog name?
Honestly, I liked the alliteration.  I wanted a clever name that was original. And my family is my little clique that I will be a part of always.

3. Is there an inspirational quote or song that keeps you moving forward and gives you strength in your life?
My maternal grandparents and my mother always used the phrase, “Rise above it”.  That phrase has been one I have recited over and over throughout different phases of my life.  It can apply to any obstacle.  When I was diagnosed with malignant melanoma, I remember telling myself that phrase over and over again.  I did not want the melanoma to define me; I just wanted it to be a phase I would go through and it would be over.  I was fortunate that I caught it in the early stages.  Now when I have to return for skin checks or blood work I find myself reciting that phrase.  It reminds me to live as an optimist.  I am well aware that though I caught it in the early stages, melanoma could return months or years from now or manifest in another type of cancer.  So I try to “rise above it” and keep going.  The other quote I live by is from Abraham Lincoln:  “Whatever you are, be a good one.”  I like it because it reminds me to be good in every aspect of my life, whether as a parent, professional, wife, daughter, sister or friend.  Life is dynamic and since we are constantly changing and growing and experiencing different relationships and roles, we should strive to be good in each and every one.

4. What is the best advice you can give to someone who thinks that skin cancer can’t happen to them?
I wish I could talk to every teenage girl and show them my scar.  Tanning is so detrimental to your skin, yet so many teenage girls think it is necessary to tan to look beautiful.  I was often teased at a young age because I wasn’t tan.  I grew up merely blocks from a beach on the shores of Lake Michigan, but I thought I was careful.  Being fair-skinned I was prone to sunburns so I wore sunblock and sunscreen.  And playing tennis during high school exposed me to the sun.  But I never went to tanning salons and I didn’t lay out on the beach to get a tan.  I was told at age 18 that I had “dysplastic nevi” which is the medical term for abnormal, but benign looking moles.  I had nearly 10 questionable moles removed from my back.  Nearly 15 years later I was diagnosed with malignant melanoma and had cancerous tissue removed from my left leg resulting in 22 stitches.  But I am alive.  And I wish the teenage girls that lay on the beach and seek out that ultimate tan think of me and others who have had melanoma.  Ten years from now this could easily be them.
mother's day1
Here is my cancer story:

This May is the two year anniversary when I was diagnosed with malignant Melanoma. May also happens to be National Skin Cancer Awareness Month. So I thought it would be fitting to dedicate a post to this cause. Most of my close friends and family know my story. It is not something I necessarily want to re-live on the post, but considering the outcome has been positive thus far (with a few bumps along the way so to speak) I will keep it simple and as understated as it deserves to be.

When I was pregnant with Quinn I noticed a new mole on my leg. When you are as fair-skinned as I am it is easy to spot new moles. After I had Quinn I noticed the mole was extremely dark and asymmetrical. I was fortunate that I was well aware of the ABCD signs of moles: asymmetry, border, color, and diameter. But I had a newborn and honestly I didn’t have the time to worry about me. Then one morning I was watching the Today show, as I always do. They had a piece on skin cancer. It alarmed me enough to find a dermatologist and make an appointment. I was lucky enough to get in in a couple weeks as most appointments were booked several months out.

So, I trekked to the doctor with a three year old and nearly four-month old in tow along with diaper bags and all the necessities to keep the kids occupied while I had a biopsy on my questionable mole. I wasn’t nervous when the doctor mentioned taking a biopsy. Having had many moles checked over in my lifetime, I have had many moles biopsied and all the results came back normal.

We left the doctor and I was convinced I would receive a postcard in the mail indicating the results were normal and recommending a skin check in another year. You can imagine my complete shock and surprise when my doctor called me later that week. I remember checking my caller ID and seeing my doctor’s name and phone number, but again I wasn’t even remotely alarmed. Maybe he just wanted to call and let me know the results were fine. Then I checked my voice mail messages and listened to him tell me to call his cell phone when I got the message. I remember it being hard to breathe and my heart racing. What doctor gives you his personal cell phone number? I dialed carefully praying the kids would stay quiet and waited til he answered the phone. And in that moment my world came crashing down around me. I barely heard anything, but the words “malignant melanoma” and “surgery” and felt like I would dissolve on the floor right then and there. The doctor kept repeating that this was a malignancy and then he used the word “cancer”. Nothing seemed real for me at that moment.

All I knew was that I had cancer.

My body had betrayed me.

I had no idea if the cancer had metastasized and tried to think if I had any other symptoms. It was just a stupid mole. How could that little mole give me cancer? Well to make a long story even longer, I had surgery and had the tissue removed from my leg. I went back in for regular skin checks and to have the doctor assess any abnormalities in my lymph nodes every three months. Then after my year anniversary of the diagnosis I was able to go in for skin checks every six months and blood tests every year. I am healthy; I am happy. And I wanted to share my experience to make others aware of the dangers of sun exposure. I wore sunscreen quite regularly. I did not sunbathe or go to tanning salons. I was aware of the dangers of sunburns. Yet, I still became one of 62,000 people diagnosed every year with the most dangerous form of skin cancer, malignant melanoma. But I am here, I am fine and I hope other people will heed my warning. Use sunscreen regularly, watch your sun exposure even when using sunscreen, and use the ABCD guide when looking at moles. And if you have any question at all, make an appointment with a dermatologist. Don’t wait until it is too late. I caught my melanoma in the earliest stages and though there is always a possibility the melanoma could return, I am diligent in knowing what to look for.

Mork Family 2

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